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St. Jude and World Health Organization are creating a platform that will transform access to childhood cancer medicines around the world.
PrOFILE
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Overview
The St. Jude Pediatric Oncology Facility Integrated Local Evaluation (PrOFILE) is a dynamic 360⸰ evaluation of health services delivery, helping care teams and institutions define an improvement strategy to increase childhood cancer survival.
We have developed two versions of PrOFILE, which are similar in terms of structure and delivery, but differ in terms of perspective, purpose, and subtle elements of the implementation process.
The Full Version of PrOFILE is a “look within” – it is an institutional journey and is meant for institutions that want to define a local improvement strategy. The Abbreviated Version is a “look across” institutions, it is a multisite collaborative journey that illustrates the Pediatric Hematology and/or Oncology (PHO) resource landscape for a subnational, national, or regional group of facilities, it guides conversations about collective strengths and opportunities, and it helps set priorities for collaborative work among stakeholders.
Modules
PrOFILE is divided into 5 components and 12 modules (Figure 1). These modules are based on evidence and expert consensus. They primarily contain questions with defined desirable thresholds to facilitate scoring and visualization of results.
Figure 1: Complete names of the Modules
Implementation
Both versions are implemented in three phases: preparation, assessment, and interpretations and action (Figure 2). PrOFILE phases lead PHO teams, facilities, or cohorts to dynamic prioritization, emphasizing areas amenable to quality improvement and implementation science methodologies. Repeated use of PrOFILE permits insightful benchmarking and local tracking of progress over time.
Figure 2: Implementation Timeline
Reports
The PrOFILE team provides score-based and descriptive institutional reports and guides the assessment team through general uses for the data collected and how to interpret the site-specific results. The primary data are for PHO teams, facilities, or cohorts to use and leverage as they see fit to improve childhood cancer care delivery locally and globally.
Our Team
Paola Friedrich, MD, MPH
Director, Metrics and Performance Unit
Director, Latin America Programs
Associate Member, St. Jude Faculty
Carlos Rodriguez-Galindo, MD
Executive Vice President
Chair, Department of Global Pediatric Medicine
Director, St. Jude Global
Miriam Gonzalez-Guzman, MD, MSc
Clinical Research Scientist II
Tracy Estevez, MBA
Program Manager, Metrics and Performance Unit
Melissa Vickers, MBA
Program Coordinator, Metrics and Performance Unit
Alyana Alvarez, MPH
Program Coordinator, Metrics and Performance Unit
Nadya Sullivan, MPH
Clinical Research Scientist